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Author Topic: Would you be so kind as to sign this petition  (Read 2457 times)

Offline Shell

Would you be so kind as to sign this petition
« on: April 19, 2008, 07:55:05 PM »
Please sign this petition it could just as easy happen to you, I was lucky I have 2 healthy kids but had I had my children with someone else it could have been a totally different story.
How do I know I am a CF carrier?? Because 3 years ago we found out my niece has CF the reason being my twin sister is a CF carrier (which means I am too) and so is my brother in law. Neither of them knew they were CF carriers until they found out their daughter had it..

It could have just as easily happened to my kids, or yours, anyone of you could be a CF carrier without even knowing.

There is now nationwide screening of newborns for Cystic Fibrosis (CF) but there is no publicly-funded screening of adults to determine if they are CF carriers. There is a 1/25 chance that a random adult is a CF carrier. If both parents are CF carriers there is a 1/4 chance their child will have CF. Carriers usually have no symptoms so will be unaware of their status. Carrier testing is done by a mouthwash swab with an instant result and is available privately but not on the NHS. People should not have to play Russian roulette with such devastating consequences.

Please follow the link and sign this petition then pass it on.

http://petitions.PM.gov.UK/CFcarriertest/


Thanks for your support.  :good:


:-* .•¤**¤•*.* Shell *.*•¤**¤•. :-*
http://www.justgiving.com/cysticfibrosis_seeoffcf

Offline Ian

Re: Would you be so kind as to sign this petition
« Reply #1 on: April 19, 2008, 08:04:55 PM »
Done it Shell.  :good:

                    Ian
An aircraft landing is just a controlled crash.

Offline Shell

Re: Would you be so kind as to sign this petition
« Reply #2 on: April 20, 2008, 08:13:37 AM »
Thanks Ian  :-*
:-* .•¤**¤•*.* Shell *.*•¤**¤•. :-*
http://www.justgiving.com/cysticfibrosis_seeoffcf

Offline Dare

Re: Would you be so kind as to sign this petition
« Reply #3 on: April 20, 2008, 01:50:03 PM »
tried to sign but you need a
British address
Mark Twain once opined, "it's easier to con someone than to convince them they've been conned."

Offline Scott

Re: Would you be so kind as to sign this petition
« Reply #4 on: April 20, 2008, 02:07:52 PM »
me too, sorry
The Honey Badger doesn't give a...

Offline Wizzo

Re: Would you be so kind as to sign this petition
« Reply #5 on: April 20, 2008, 05:08:47 PM »

All signed up here Shell, I have also made the topic sticky for the next few months to get as much exposure as possible.
"No Matter how little money and how few possessions, you own, having a dog makes you rich."

GPWizard F1 Forum https://www.gpwizard.co.uk
:wizard:
Wizzo

Offline Shell

Re: Would you be so kind as to sign this petition
« Reply #6 on: April 20, 2008, 10:20:10 PM »
Thanks anyway Dare & Scotty much appreciated

And thanks Wiz thats really good of ya  :D :D

Its scarey when you think it could just as easy be you, if i'd have had my kids with someone else and he'd been a CF carrrier then my kids might have had it too, at least if you know the risks before you start thinking about a family then you can be prepared for it.
:-* .•¤**¤•*.* Shell *.*•¤**¤•. :-*
http://www.justgiving.com/cysticfibrosis_seeoffcf

Offline Alianora La Canta

Re: Would you be so kind as to sign this petition
« Reply #7 on: April 21, 2008, 02:20:05 PM »
Signed the petition, Shell.
Percussus resurgio
@lacanta (Twitter)
http://alianoralacanta.tumblr.com (Blog/Tumblr)

Offline cosworth151

Re: Would you be so kind as to sign this petition
« Reply #8 on: April 21, 2008, 02:34:05 PM »
Sorry, Shell. Same problem as Dare & Scotty. It's a very good cause.  I wish you well on it.
“You can search the world over for the finer things, but you won't find a match for the American road and the creatures that live on it.”
― Bob Dylan

Offline Shell

Re: Would you be so kind as to sign this petition
« Reply #9 on: April 21, 2008, 09:06:56 PM »
Thanks for trying Cos  :good:

Thanks Ali  :yahoo:
:-* .•¤**¤•*.* Shell *.*•¤**¤•. :-*
http://www.justgiving.com/cysticfibrosis_seeoffcf

Offline Shell

Re: Would you be so kind as to sign this petition
« Reply #10 on: June 12, 2008, 10:16:03 PM »
Just to let you all know the petition was submitted on the 22nd May.

For the petition to be submitted there had to be over 200 signatures,it reached 333.

So its a case of waiting now to see if the petition will make any difference.

Fingers crossed it will.

Thanks again to everyone who offered their support. 

http://www.cftrust.org.uk/
:-* .•¤**¤•*.* Shell *.*•¤**¤•. :-*
http://www.justgiving.com/cysticfibrosis_seeoffcf

CrazyHorse

  • Guest
Re: Would you be so kind as to sign this petition
« Reply #11 on: June 12, 2008, 10:30:46 PM »
sorry Shell missed ur original post and only just gone to the petitions site and it closed





Offline Shell

Re: Would you be so kind as to sign this petition
« Reply #12 on: June 13, 2008, 08:13:22 AM »
Thanks anyway pleiades, it got the ammount of signatures needed so hopefully will make a difference.  :-*
:-* .•¤**¤•*.* Shell *.*•¤**¤•. :-*
http://www.justgiving.com/cysticfibrosis_seeoffcf

 


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